Addy Update

We have had 4 appointments for Addison in December.  So I am putting them all in 1 post.  We had followed up with the pediatrician and she agreed with me that we should go to another allergist and to also go back to the GI doctor.  We also had our follow up with Urology coming up at the end of December. 

So mid December we had our appointment with the allergist.  He thought that we should test her cause it could be allergy related and he also wants to talk to the GI doctor.  They tested her for the common food allergies.  She showed a small reaction to Soy and Chicken.  We don't have to take her off these foods right now.  We have to keep a food diary and keep track of when she is sick.  The allergist is hoping that she has 3 reactions during this time and see if we notice a pattern. We go back in February and go over things.

Here is her back from the testing :(  Addy is a trooper!  She cried a little more because she had to have her shirt off.  Afterwards we got an ice cream cone! :)

The following week we went to a follow up appointment with GI.  After talking with them and some of Addison's symptoms have changed since our last visit.  She has more vomit each time she is sick than she has before.  So she is now being treated for Cyclic Vomiting Syndrome (CVS) .  CVS is hard to diagnose. The only way a doctor can diagnose CVS is by looking at symptoms and medical history to rule out any other possible causes for the nausea and vomiting. Then the doctor must identify a pattern or cycle to the symptoms.  There isn't a certain medicine that makes this go away. But they have found that an antihistimine can help with the symptoms.  So Addison is taking that twice a day.  If we don't notice a change in about 6 weeks there is another medicine that we can try.  With that medicine you take when you can tell a sickness is coming on and it will help lessen it or make it go away.  So far her last attack was December 6th.  And it usally comes on between every 2-4 weeks.... 

UPDATE: She is sick tonight 1/1/12 woke up this morning feeling sick.  She laid around all day, slept.  Didn't eat a thing or barely drink.  (the sickness usually comes on just before lunch so this time it was a little different) She started throwing up around 8 pm.  She has only had a little bit of water and has probably gotten sick about 6 or 7 times in 2 1/2 hours.  So now I'm really concerned about dehydration.  We're deciding if we should take her to the ER or not.  I don't see any signs of dehydration at the moment.

It's funny to me that she is now being treated for CVS because a friend brought this syndrome to my attention months ago.  I did some research on it and asked her drs but they didn't feel it was it because she didn't always throw up... well I guess since the vomit has increased it's a good time to try that route.  SIGH....

The following week we had her 6 month follow up sonogram to check her kidney and her ureter to make sure that it hasn't gotten larger.  After the sonogram we had an appointment with the urologist to get the results.  Her kidney and ureter have gotten larger.  This is not a good thing.  It was enlarged before at 9mm and has grown to 13mm in about 7 months.  The doctor says it's a miracle that she isn't having any complications from this and that everything is functioning properly.  However over time this could cause damage to her kidney and some other issues.  He wants to see her again in April and have another sonogram and the DR said seeing that they are growing they will continue to grow and she is going to need surgery probably in the spring. This is something that we found in the first sonogram that she had done because of the vomit and diaherra.  They are in no way related to each other. 

We serve a BIG GOD and we know that He has amazing plans for Addison's life.  We very much believe in healing and are praying for her with both of these issues going on.  Please pray for her too. We know that this will be a testimony!